The surgeon we have for E seems really great. My friend A who has had 2 children with cleft lip/palate recommended using The Cleft Palate Foundation to find teams in our area. So the doctor my OB/GYN recommended happens to be the head of one of the AZ teams. Hooray! R and I met him this morning and he seems great. The nurse talked to us as well, mostly about breastfeeding issues, and we got a special needs feeder from her to try and get used to.
So E will have the lip surgery around 2.5-3 months (10 weeks or so), and he has to weigh 10 pounds. I think there is a rule of 10s: 10 weeks, 10 pounds, 10mg (?) of hemoglobin. Then, the palate surgery will be at 6-7 months. Both surgeries are overnight stay, and I think he said that the lip surgery was about 60 minutes of anesthesia. I'm not sure if the palate one is longer, so I'll let you know when I find out. E is due January 1st, so that puts him in surgery around March, which they said is good because RSV season will be about over.
That reminds me: I'm publicly announcing that I'm not taking E anywhere for the first 3 months. If you want to come over and see him you must wash hands and not be sick at all! I may even keep some face masks available. Not kidding. I don't want him catching anything on top of everything else. So, y'all know :)
I'll keep you posted on any new information. The next bit will probably come after the ultrasound next week. Fingers crossed that everything looks great in there!
6 comments:
I'm so glad you like the surgeon. It's nice not to have to look around for a surgeon a ton with all the stress.
Keep us posted on how things are going. Are there any risk of pre-mature delivery?
I don't think so. I'm not considered a high-risk pregnancy even, because I asked them today. That's a good question though. I go to the ob/gyn on Thursday and I'll ask.
Sounds like everything is coming together nicely. Hooray for you!! That is awesome that you found a surgeon that you're happy with.
I don't blame you for keeping Eli at home for the first 3 months. Philip was our preemie weighing in at a whopping 8 lbs. 10 ozs. with RDS. I didn't take him anywhere for 2 months, maybe a little longer. The trick was keeping his older siblings hands clean!! Good luck with Miles! :)
You sound so prepared already. I can't wait to see your sweet little Eli! I'm glad you found such a wonderful surgeon and those bottles look really cool! Take care!
So you got a special needs feeder- those are also called haberman. I'll try and see if I can round you up some other bottles to try so you have an assortment to choose from.
We too kept Jimmy inside for the first 2 months (prior to his surgery). He was born December 29th, and we were worried about him getting sick before surgery. My husband made a little sign for the door which told people to go was their hands. We were a little more laid back with our second son, but I don't blame you for wanting go protect your baby from RSV. Keep me posted on how that ultrasound goes. -Anna
I'm so glad you found a good surgeon. It sounds like you have access to some really great care and info. What a good mommy you will be for Eli. And I totally am with you on being cautious for the first 3 months. I am the same with my babies, and I kept Evan away from everyone before his ear tube surgeries too.
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