The geneticist herself said that even though unrelated birth defects usually indicate an underlying problem, she has seen this happen before with her own eyes: two unrelated birth defects that just happen. I think E is one like that :) Thanks for all your prayers, thoughts, fasts, hopes, and wishes. I already felt like I dodged a bullet with M coming out perfect, so now I really feel like I'm beating the odds. I think we may just be a family of four after this little scare. Wow.
The plan now:
- See a cranio-facial surgeon next Tuesday. He'll be taking care of the lip and palate surgeries that happen around 3 months old and 12 months old, respectively. When we meet we get to ask all kinds of questions and hear the plan for the first year of E's life. I'm guessing that I will have yet another ultrasound so they can track his development and plan for surgery with as much information as possible. I'll keep you posted on how he looks at various checkpoints along the way.
- Go to my regular OB/GYN checkup next Thursday. I'm assuming they'll put us in contact with a pediatrician a little earlier than usual. I like the one M has, so I may call and set up something with her in a few weeks. I'm also assuming they'll put us in contact with a pedatric geneticist to make sure everything is good at the birth.
- Meet with the La Leche League to gain support for breastfeeding issues that will inevitably come up. Also, try and find "special needs feeder" bottles and nipples made with safe plastic (no pthalates, no biphesonol-A) for E in case he can't latch. (Special needs feeders are specifically made for cleft lip/cleft palate babies to help them eat). Plea: anyone who knows anything about this please share!
- Go to another ultrasound on September 26th to track growth, kidney development, and cleft lip/palate development.